Thursday, July 17, 2008

But you don't look sick...

..is also the name of my favorite website, www.butyoudontlooksick.com. If you have an "invisible illness", check it out. It's a great support site for all of us who look fine, who WERE fine until God decided we needed this lesson, and now feel everyday like we used to feel when we finally acquiesced and took a sick day from work. It's amazing that I've actually gotten used to this feeling - again. I went into serious denial last year when I got a "remission" diagnosis after two years on Plaquenil for my connective tissue disease - then went off of my medication because it caused severe weakness in my knee muscles. Seriously. Couldn't cross my legs, bend them sideways or sit cross-legged or they would "dislocate" to a major degree of pain. So, a year later, the knees are MUCH better - I might actually sit cross-legged soon one day - but all the fatigue, joint and muscle pain are back and I'm in bed most days when I don't have to be up. It sucks to have this illness, but even worse to know that I NEED my medication or it comes back. Reality check! So, back to the rheumatalogist today to find a new med that keeps my knees intact. Wish me luck!

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